Skin Care Campaign

PATIENT ORGANISATIONS

Acne Support Group

PO Box 9

Newquay TR9 6WG

Reg. Charity No. 1026654

Tel: 0870 870 2263

Email: alison.dudley@btopenworld.com

Website: www.stopspots.org

Alopecia Awareness

13 Crun Melyn Parc

Hayle

Cornwall TR27 4RH

Reg.Charity No. 1115736

Contact: Wendy Woodrow

Tel: 07834 958578

Email: wendy.woodrow@btinternet.com

and

162 Manor View

Par

Cornwall PL24 2EN

Contact: Leanne Flavell

Tel: 07854 779026

Email: leanne.flavell@btinternet.com

Website: http://www.alopecia-awareness.org.uk/

For all correspondence please send an A4 sae.

Alopecia UK

5 Titchwell Road

London

SW18 3LW

Tel: 0208 333 1661

Email: info@alopeciaonline.org.uk

Website: www.alopeciaonline.org.uk/

Bullous Pemphigoid Support Group

17 Barley Mount

Redhills

Exeter EX4 1RP

Tel: 01392 431362 (evenings)

Fax: 01392 364865

Best time to telephone: any reasonable time

Cancer Research UK

PO Box 123

London WC2A 3PX

Reg. Charity No. 1089464

Tel: 0207 242 0200

Website: www.cancerresearchuk.org

Cancer information nurses: 0207 061 8355

Patient information website: www.cancerhelp.org.uk

SunSmart website: www.sunsmart.org.uk

Cancer Research UK is dedicated to research on the causes, treatment and prevention of cancer.

Caring Matters Now

Congenital Melanocytic Naevus

The CMN Support Group

Bridge Chapel Centre

Heath Road

Liverpool L19 4XR

Tel: 0151 281 9716

Fax: 0151 281 9717

Website: www.caringmattersnow.co.uk

Changing Faces

Support for people with disfigurements

Changing Faces Centre

33-37 University Street

London WC1E 6JN

Reg. Charity No. 1011222

Tel: 0845 4500 275

Fax: 0845 4500 276

Email: info@changingfaces.org.uk

Website: www.changingfaces.org.uk

Contact A Family

Supports families of disabled children

209-211 City Road

London EC1V 1JN

Reg. Charity No. 284912

Tel: 0207 608 8700

Fax: 0207 608 8701

Minicom: 0808 808 3556

Email: info@cafamily.org.uk

Website: www.cafamily.org.uk and www.makingcontact.org

Darier’s Disease Support Group

(DARDIS)

29 St Anne’s Road

Hakin

Milford Haven

Pembrokeshire SA73 3LQ

DEBRA

DEBRA House

13 Wellington Business Park

Duke’s Ride

Crowthorne

Berkshire RG45 6LS

Reg. Charity No. 1084958

Tel: 01344 771961

Fax: 01344 762661

Email: debra@debra.org.uk

Website: www.debra.org.uk

The Ectodermal Dysplasia Society

108 Charlton Lane

Cheltenham

Glos. GL53 9EA

Reg. Charity No. 1089135

Tel: 01242 261332

Email: debra@debra.org.uk

Website: www.ectodermaldysplasia.org

Contact: Mrs Diana Perry

Ehlers-Danlos Support Group

PO Box 337

Aldershot

Hampshire

GU12 6WZ

Tel: 01252 690940

Email: director@ehlers-danlos.org

Website: www.ehlers-danlos.org

Gorlin Syndrome Group

11 Blackberry Way

Penwortham

Preston PR1 9LQ

Reg. Charity No. 1096361

Tel: 01772 517624

Email: gorlin.group@btconnect.com

Website: www.gorlingroup.co.uk

Hairline International

The Alopecia Patients’ Society

Lyons Court

1668 High Street

Knowle

West Midlands B93 0LY

The Hair Trust Reg. Charity No. 782270

Please enclose an A4 sae.

Website: www.hairlineinternational.co.uk

Herpes Viruses Association (SPHERE)

41 North Road

London N7 9DP

Reg. Charity No. 291657

Tel: 0207 607 9661 (office and minicom V)

Helpline: 0845 123 2305 (24 hour access)

Fax number available on request

Wesbite: www.herpes.org.uk

H.S.S. Group UK & Ireland

Supporting people with Hidradenitis Suppurativa

207 Fernhill Road

Bootle

Merseyside L20 0AG

Tel: 0799 0776168

Email: carolyn.corrin@ukonline.co.uk

Website: www.communityzero.com/ukhsgroup

The Hyperhidrosis Patient Support Group

Email: info@hyperhidrosisuk.org

Website: www.hyperhidrosisuk.org

Tel: 07831 166081

HITS ( UK ) Family Support Network

Supporting families affected by the Hypomelanosis of Ito Syndrome

33 Fenworthy Close

Shiphay

Torquay

Devon TQ2 7JQ

National Contact: Sandra Field

Tel: 01803 401018

London Contact: Terri Grant

Tel: 07940 114943

Helpline: Tuesday evenings 7-9pm only ( UK time): 0208 352 1824

Email: tgrant@uk.ey.com , or tgrant@hitsuk.freeserve.co.uk

Website: www.e-fervour.com/hits

Ichthyosis Support Group (ISG)

PO Box 7913

Reading

RG6 4ZQ

Tel: 0845 602 9202

Email: isg@ichthyosis.org.uk

Website: www.ichthyosis.org.uk

LUPUS UK

St James’ House

Eastern Road

Romford

Essex RM1 3NH

Reg. Charity No. 1051610

Tel: 01708 731251 (5 lines) and 24 hour answerphone

Fax: 01708 731252

Email: headoffice@lupusuk.org.uk

Website: www.lupusuk.org.uk

Lymphoedema Support Network

St Luke’s Crypt

Sydney Street

London SW3 6NH

Reg. Charity No. 1018749

Tel: 0207 351 4480 (answerphone out of hours)

Fax: 0207 349 9809

Email: adminlsn@lymphoedema.freeserve.co.uk

Website: www.lymphoedema.org/lsn

National Eczema Society

Hill House

Highgate Hill

London N19 5NA

Reg. Charity No. 1009671. A company limited by guarantee registered in England No. 2685083.

Tel (office): 0207 281 3553

Fax: 0207 281 6395

Eczema Helpline: 0870 241 3604

Email: helpline@eczema.org

Website: www.eczema.org

Health Professional Information Line: 0207 651 8230

Email: professional@eczema.org

Professional members’ website: www.eczemapro.org

National Lichen Sclerosus Support Group

PO Box 7600

Hungerford

Berkshire RG17 7XD

Please enclose sae for reply

Website: www.lichensclerosus.org

The Neurofibromatosis Association

Quayside House

38 High Street

Kingston on Thames

Surrey KT1 1HL

Registered charity No 1078790

Tel: 0208 439 1234

Fax: 0208 439 1200

Minicom: 0208 481 0492

Email: info@nfauk.org

Website: www.nfauk.org

Pemphigus Vulgaris Network

Flat C, 26 St German’s Road

London SE23 1RJ

Please enclose an A4 sae for reply

UK website: www.pemphigus.org.uk

Pseudoxanthoma Elasticum Support Group (PiXiE)

15 Mead Close

Marlow

Bucks SL7 1HR

Reg. Charity No. 1055465

Tel: 01628 476687

Email: PXEeurope@aol.com

Website: www.pxe.org.uk

Psoriasis Association

Milton House

7 Milton Street

Northampton NN2 7JG

Reg. Charity No. 257414

Helpline: 08456 760 076

Tel: 01604 711129

Fax: 01604 792894

Email: mail@psoriasis.demon.co.uk

Website: www.psoriasis-association.org.uk

Psoriasis Help

Website: www.psoriasis-help.org.uk

Psoriasis Help is a not for profit, non-commercial, free membership, UK based website that is dedicated to helping people suffering from the chronic skin disease psoriasis. The site contains information about treatments, handy tips for living with psoriasis and other topics. The site is primarily a discussion forum, where fellow psoriasis sufferers can exchange views and advice on how to live with and treat psoriasis. Psoriasis can be an isolating, depressing disease and sometimes it is just good to have a moan and get things off your chest. Everyone is welcome.

Psoriatic Arthropathy Alliance

PO Box 111

St Albans

Herts AL2 3JQ

Reg. Charity No. 1051169

Tel: 0870 7703212 (telephone support is provided)

Fax: 0870 7703213

Email: info@psoriasis-uk.org

Website: www.psoriasis-uk.org

Raynaud’s & Scleroderma Association

112 Crewe Road

Alsager