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REPORTS ON THE PROVISION OF DERMATOLOGY
SERVICES
Associate Parliamentary Group on Skin (1997).
An Investigation into the Adequacy of
Service provision and Treatment for Patients
with Skin Diseases in the UK.
Associate Parliamentary Group on Skin (1999).
Report on the enquiry into fraudulent
practice in the Treatment of Skin Disease.
Associate Parliamentary Group on Skin (2000).
Report on the Enquiry into Skin Diseases
in Elderly People.
Associate Parliamentary Group on Skin (2001).
Assessment of Best practice for Dermatology
Service in Primary Care.
All reports can be obtained from Portcullis
Research 3/19 Holmbush Road London SW15
3LE
For the Best Practice Report go to the
address below and click on download report
http://www.skincarecampaign.org/dcwgr.htm#report
PATIENT INTEREST GROUPS AND WEB SITES
The following is a selection of condition
specific patient interest and support groups.
Acne
Acne Support Group, 1st Floor, Howard House,
The Runway, South Ruislip, Middlesex, HA4
6SE. Reg. Charity No. 1026654. Telephone
messaging service: 020 8841 4747. Email:
alison@the-asg.demon.co.uk
Website: http://www.m2w3.com/acne
also http://www.stopspots.org/
Hairline International
Hairline International, The Alopecia Patients'
Society, Lyons Court, 1668 High Street,
Knowle, West Midlands, B93 OLY. Reg. Charity
No. 1056204. Tel: 01564 775281 Fax: 01564
782270. Website: http://www.hairlineinternational.com
Eczema National
Eczema Society, Hill House, Highgate
Hill, London, N19 5NA. Reg. Charity No.
1009671. Tel: 020 7281 3553 Fax: 020 7281
6395. Eczema Information Line: 0870 241
3604 (1-4pm Mon-Fri). Website: http://www.eczema.org/
Herpes
Herpes Viruses Association (SPHERE)
and Shingles Support Society, 41 North Road,
London, N7 9DP. Reg. Charity No. 291657.
Tel: 020 7607 9661 (office and Minicom V)
Tel: 020 7609 9061 (helpline - 24 hours
access). Fax number available on request.
Website: http://www.astrabis.co.uk/sites/herpesvirusesa/default.htm
Tissue Viability
Tissue Viability Society, Glanville
Centre, Salisbury District Hospital, Salisbury,
SP2 8BJ. Reg. Charity No. 1041915. Tel:
01722 336262 Ext. 4057. Fax: 01722 425253.
Email: tvs@dial.pipex.com Web site: http://www.tvs.org.uk
LUPUS
LUPUS UK, St James House, Eastern Road,
Romford, Essex, RMI 3NH. Reg. Charity No.
1051610 Tel: 01708 731251 (5 lines) and
24 hour Answerphone. Fax: 01708 731252.
Lymphoedema
Lymphoedema Support Network, St Luke's
Crypt, Sydney Street, London, SW3 6NH. Reg.
Charity No. 1018749. Tel: 020 7351 4480.
(answerphone out of hours). Fax: 020 7349
9809. Email: adminlsn@lymphoedema.freeserve.co.uk
Website: http://www.lymphoedema.org/lsn/
Neurofibromatosis
Neurofibromatosis Association, 82 London
Road, Kingston on Thames, Surrey, KT2 6PX.
Reg. Charity No. 284653. Tel/Answerphone:
020 8547 1636. Fax: 020 8974 5601. Minicom:
020 8392 0184. Times: Monday-Friday: 9:00am
- 5:00pm Email: nfa@zetnet.co.uk
Website: http://www.nfa.zetnet.co.uk/
Psoriasis
Psoriasis Association, Milton House,
7 Milton Street, Northampton, NN2 7JG. Reg.
Charity No. 257414. Tel: 01604 711129. Fax:
01604 792894. Psoriatic Arthropathy Alliance,
PO Box 111, St. Albans, Hertfordshire, AL2
3JQ. Reg. Charity No. 1051169. Tel/Fax:
01923 672837 (Telephone support is provided).
Email: info@paalliance.org
Website:
http://www.paalliance.org
The following are General Interest Groups
and Patient Support
Cancer BACUP 3 Bath Place, Rivington
Street, London, EC2A 3DR. Reg. Charity No.
1019719. Cancer Support Service open 9am-7pm
Tel: Freephone 0808 800 1234. Fax: 020 7696
9002. Website: http://www.cancerbacup.org.uk
Wessex Cancer Trust's Marc's Line, Marc's
Line Resource Centre, Dermatology Treatment
Centre, Level 3, Salisbury District Hospital,
Salisbury, SP2 8BJ. Tel: 01722 415071. Website:
http://www.wessexcancer.org/
(part of the Wessex Cancer Trust Cancer
Information Network)
Changing Faces 1 & 2 Junction Mews,
Paddington, London W2 1PN Reg. Charity No.
1011222 Tel: 020 7706 4232 Fax: 020 7706
4234. Email: info@changingfaces.co.uk
Website: http://www.changingfaces.co.uk
Contact a Family 209-211 City Road,
London, EC1V 1JN. Reg. Charity No. 284912
Tel: 020 7608 8700 Fax: 020 7608 8701 Minicom
020 7608 8702. Helpline 0808 808 3555, Freephone
for parents and families (10am-4pm, Mon-Fri).
Email: info@cafamily.org.uk
Website: http://www.cafamily.org.uk
(Puts families in touch who have similar
rare conditions)
Wound Care Society PO Box 170, Hartford,
Huntingdon, PE29 1PL. Reg. Charity No. 1013304.
Tel / Fax: 01480 434401. Email: wound.care.society@talk21.com
Website: http://www.woundcaresociety.org
(for leg ulcers and pressure sores)
Skin Care Campaign Hill House Highgate
Hill London N19 5NA The Skin Care Campaign
(SCC) is an umbrella organisation representing
the interests of all people with skin diseases
in the UK. It is a subsidiary of the National
Eczema Society, a registered charity. Reg.
Charity No. 1009671 Wesite:
http://skincarecampaign.org
WEB SITES OF GENERAL INTEREST
The following are examples of interesting
and useful web sites
Department
of Health
National
Research Register
The National Research Register (NRR)
is a database of ongoing and recently completed
research projects funded by, or of interest
to, the United Kingdom's National Health
Service.
National
Electronic Library for Health
The role of the NeLH is to provide health
care professionals and the public (through
NHS Direct Online and the New Library Network)
with knowledge and know-how to support health
care related decisions.
NHS
Direct On Line
UK
On line
PROFESSIONAL BODIES, RESOURSES, GROUPS
AND WEBSITES SPECIFIC TO DERMATOLOGY
For health professional groups and bodies
British Dermatological Nursing Group
The British Dermatological Nursing Group
(BDNG) was established in 1989 to offer
an alternative speciality group for those
nurses who were not RCN members. The group
has become established within the associated
member groups of the British Association
of Dermatologists (BAD). The main aims of
the group are:
· Promote the development of the high
standard of care for dermatology patients.
· Promote the development of the nursing
role in dermatology.
· Promote and support the nursing education
in Dermatology.
· Promote and support research into all
aspects of dermatology related to nursing
and dermatological patient care.
· Provide a source of expertise for nurses
working within dermatology
· Provide a forum for the dissemination
knowledge
For further information, refer to the following
web site: http://www.bdis.org.uk/BDIS/intro_pages/BDNGhome.html
This site is not extensive but it does provide
links to dermatology journals and on line
databases. However, the site is in the process
of being absorbed into the British Association
of Dermatologists Websites
British Association of Dermatologists
The main aims of the BAD are available
on the web site. However to summarise BAD
aims to stimulate appropriate research,
publish, advise the government and other
professional bodies and promote improvements
in dermatological care. The web site is
quite extensive so finding specific documents
is not always straightforward, also some
parts are password protected. The web site
address is http://www.bad.org.uk/
However, the web site does provide links
to many of the dermatology professional
bodies. To find these on the web site click
on Affiliated Groups. The site also provides
links to the various condition specific
patient support groups. See also Patient
Interest/Support groups
British Association of University Teachers
of Dermatology (BAUTOD)
The main function of BAUTOD is to take
a special interest in teaching dermatology
and to enhance the professional practice
of dermatology. To access this site directly
go to the BAD web site and click on affiliated
groups.
Cochrane Skin Group
The group accepts reviews of skin care
disease that may be of interest to health
professionals and the public, it therefore
includes some aspects of complementary and
alternative skin care therapies. Other focuses
of the group include delivery of health
care and management of skin diseases. http://www.nottingham.ac.uk/~muzd/
International Skin Care Nursing Project
International Skin Care Nursing Group (ISNG)
The International Skin Care Nursing
Project is a multi-faceted initiative involving
key strands; the development of the ISNG
and the support of a major World Health
Organisation public health project. These
activities involve development and research
activity. The International Project Nurse
(Skin Care), Rebecca Penzer, is responsible
for the day to day operation of the project
and its Advisory group is Chaired by Dr.
Steven Ersser, both of whom are members
of the above Skin Care Nursing Research
& development Group. For more information
refer to the following web site or contact
the above address. http://www.soton.ac.uk/~isng/
International Foundation for Dermatology
The INTERNATIONAL FOUNDATION FOR DERMATOLOGY
(IFD) is a non-profit organisation whose
principal mission is to improve dermatologic
care in rural areas of developing countries.
For more information refer to the following
website: http://www.ifd.org/
or For further information contact:
Chairman: International Foundation for Dermatology
Professor Terence J Ryan, Oxford Centre
for Healthcare Research & Development, Oxford
Brookes University, 44 London Road, Headington
OXFORD 0X3 7PD. Tel: 44(0)1865 485294 Fax:
44(0)1865 485297 e-mail: ryan@ermine.ox.ac.uk
Skin Care Research & Development Group
This group is based in the University of
Southampton, School of Nursing and Midwifery
and the main aim is to promote healthy skin
through a programme of high quality research,
practice development and education. For
further details about this group contact:
Sarah Newman Research Secretary School of
Nursing and Midwifery University of Southampton
Hampshire SO17 1BJ UK Tel +44 (0)2380 598226
Email: sjn2@soton.ac.uk
For health professional dermatology resources
Action on Dermatology
Part of the National Patients Access Team.
The Action on Dermatology aims to achieve
improvements in access to services for patients.
The programme aims to do this by identifying
areas of best practice. There are currently
16 pilot sites looking at various aspects
related to the delivery of dermatological
services. For more information visit the
action on web site at http://www.modernnhs.nhs.uk/scripts/default.asp?site_id=17&id=2712
Annotated Bibliography of the Dermatological
Nursing Literature.
Ersser S (ed), Buchanan, P., Bullis, S.,
Crowle, A., Dennis, H., Doherty, C., Jackson,
K., Lawton, S., Penzer, R., Peters, J.,
Pringle, F., Ryan, T., Stone, L., Taylor,
H., Thomas, A., & Van Onselen, J. 1998.
Literature. Oxford Centre for Health and
Development, Oxford Brookes University,
Oxford.
BIOGLAN
Pharmaceutical company with information
on dermatological products http://www.bioglan.com/
British Association of Dermatology Members
Handbook 1999/2000.
British Association of Dermatologists.
Dermatology Online Resource List.
To access this list go to http://www.moor.co.uk/f_aboutus.htm
and then click on Web Links
Dermatology on -line
This site is specific for GP's and other
doctors and allows them to obtain interactive
advice on areas of concern regarding dermatological
conditions. To access the service, go to:
www.doctors.net.uk/dermatology.
Users need to be registered with http://www.doctors.net.uk
to access the service
Moor Instruments
Moor provides a useful list of dermatological
web sites aimed at the professional and
some patient related and disease specific
sites. It provides direct links to some
of the Dermatology Online Journals, Electronic
Textbook of Dermatology and American Links.
Again a useful place to start. http://www.moor.co.uk/
Omni
OMNI (Organising Medical Networked Information)
is a gateway to evaluated, quality Internet
resources in health and medicine aimed at
students, researchers, academics and practitioners
in the health and medical sciences. The
following web site is a link to alphabetical
dermatology resources. This again is a good
place to start although it is not comprehensive.
http://omni.ac.uk/subject-listing/WR100.html
Referral Advice: A guide to appropriate
referral from general to specialist services.
2002.
National Institute for Clinical Excellence.
Also refer to http://www.nice.org.uk
11 The Strand, London WC2N 5HR Tel: 020
7766 9123
Skin Care Campaign. Skin Care Campaign
Directory 2001/2002.
Skin Care Campaign. http://www.skincarecampaign.org
Society of Dermatological Physicians
Assistants
This society has collected together a resource
list of dermatological related sites from
around the world. Included in this list
are professional groups (predominantly from
the USA ) and disease specific sites. This
represents a good starting point for dermatological
resources. To access the online resource
list go to: http://home.pacifier.com/~jomonroe/SDPA02.HTML
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